Smiles!

Update- 10-30-17

Mae is doing very well with her fructose and has reached the 'highest level' to add in order to create a formula that has an appropriate ratio of fats, proteins, and fructose to create the caloric intake for growth! This is fantastic news! However, the best news is that she is, as of Saturday night, off of her TPN! She has made so much progress/growth in the last seven-nine days that the doctors believe she is absorbing enough calories by mouth to warrant taking her off of the TPN, she does still have an IV of fluids for 12 hours during the day, but, overall her health has improved tremendously. Right now we are at the point that she will either 1. come home with an IV for fluids, or (if she shows more improvement) 2. will come without an IV. Regardless of either of those, the best news is that she will not be on TPN. She will have her central line in place when she is eventually discharged in case she loses weight or is failing to thrive. 

On a neurological level, we are very encouraged at the signs that Mae has shown over the last couple of weeks. She is starting to give us meaningful smiles, make beautiful eye contact, and has started to make baby babbling noises when engaged with us. This is wonderful news and we are thrilled at her progress. We are hopeful that things continue on this path, she is truly a miracle and has the most precious smile and personality. 

*We have not been given a discharge date yet, but, we are hopeful within the next week to have her at home with us. We appreciate the continued love and support that we have been given, we are extremely fortunate to have such amazing people in our lives.