Oct. 10 Update

Update -  Tomorrow morning at 7:30 Mae will have a procedure to insert a central line into her chest that will go directly to the vessels surrounding her heart. The central line, also called a Broviac, will be responsible for distributing the TPN throughout her body 24 hours a day. While under anesthesia for this procedure, she will also get a follow up MRI to compare to the one that was done prenatally and at birth. We are monitoring her input and output very carefully, she is getting between 22 and 25 ounces of  special carbohydrate free formula each day.  We are going to be learning Broviac care this week and weekend, with the hope that we will be discharged early next week, that would be the best case scenario. Mae has gained weight for the past four days in a row! That is a huge milestone, she is getting the majority of her daily nutrition through the TPN, but her formula is being absorbed a tiny amount as well.

Although no parent wants to be in the hospital, we are very fortunate to be receiving the best care possible. We have a gorgeous view from the room that overlooks a park and forest. The  leaves on the trees are changing colors and it is absolutely beautiful. This past weekend Ryan, the boys, and I went to a tailgate for the Michigan and Michigan State football game… Go Green! We also participated in crafts and the boys made some special things to take home. Mae has been given the clearance to be able to leave her room, so we have been taking walks around the hospital for a change of scenery.

Thank you to everyone who is continuing to pray for Mae and our family. We appreciate the prayers more than anyone could imagine. It is a very the overwhelming feeling that we are surrounded by so much love and support. We are truly blessed.