Improving

As we come to the end of our fourth week at UM Children’s,  we are starting to get some good news and closer to getting home.  We had initially presumed we would be going home earlier this week.  Stacy and I completed a two day training for home care of the Broviac and TPN administration. However due to some unexpected PROGRESS, the doctors decided to keep her 2 more days to test some treatments/increased volume of a special formula (by bottle/mouth). She responded well and therefore they are trying a fructose infusion starting today at noon. If she responds to that, we have a path to major improvement! Dr.'s thought we would know within 48 hours. If it goes well, then it appears she will go through an approximate 10 day weaning period (at the hospital) off of TPN and we COULD come home with no chemicals/no machines!! If she does not tolerate the fructose, then we will probably come home Monday or Tuesday back to plan A (on TPN). She is catching up in her growth and we are all cautiously optimistic about this new path.