Things were progressing nicely last week and we were hopeful that discharge was going to occur last week. However, for unknown reasons, Mae started to lose weight which meant it became necessary to begin the TPN regiment again. Although this was disheartening, the TPN dosage that she is on now is extremely minimal compared to what she was originally on and she does not have lipids being infused at this time, only TPN. Approximately 20% of her calories are coming from TPN and 80% are coming from the carbohydrate free formula.
Over the weekend, Mae did show a trend of weight gain for two days (Saturday and Sunday) so we are hopeful that she will continue this and then we can start to ween off of TPN again. The next steps after this will be determined once she has shown growth with the potential options being an IV with dextrose to get extra carbohydrate calories or increasing the amount of proteins and fats in her formula to get the extra calories.
Although this was difficult at first because we were preparing for her to come home, we are thankful that it happened at the hospital and not at home because it would have required another return/admit to the hospital. We want her at home when she is stable and healthy. The boys were able to come and visit this weekend and they LOVED seeing their little sister as she is babbling and interacting with them. She is truly a blessing and seeing the three of them together was beyond wonderful.
Thinking and praying for you all everyday!
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