Mae was discharged from the hospital late Thursday night/early Friday morning and arrived home around 1:00am. We have been blessed with quality home health care, appropriate training, and generous neighbors/friends/and family to make this transition as smooth as possible. So far, we are all doing great and could not be more happy to have Mae at home with us. The weekend went well and we had visiting nurses come out Friday morning and Friday night and then again yesterday and today. Mae has a follow up appointment at U of M tomorrow, Wednesday, where she will meet with a plethora of doctors and specialists related to her malabsorption issues.
Currently, Mae is on a TPN regimen of 12 hours on (at night) and 12 hours off (during the day). Ryan and I take her on/off the TPN daily. She has not lost weight since we have been at home and she has remained stable according to our daily measurements. Her formula and other medical supplies are delivered weekly by the medical company when her TPN infusions arrive. We are so fortunate to have access to these resources and medical professionals.
"All this is for your benefit, so that the grace that is reaching more and more people may cause thanksgiving to overflow to the glory of God." (2 Corinthians 4:15) We continue to be amazed and overwhelmed by the truly wonderful people in our lives who have done countless acts of kindness for Mae and our family. We could not be more appreciative or thankful. Mae is definitely a miracle to each of us.
May you have a very blessed Thanksgiving. May prayers continue to surround you with God's presence and love for the amazing baby Mae.
ReplyDeleteThis is so wonderful!
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