BIG News... Cautiously Optimistic!

Update 11/14/18: Mae is officially DONE with her infusions! Read that again- Mae is officially DONE with her infusions! We are cautious to share this information because we still have the possibility of restarting them, but, for the first time in more than a YEAR, Mae was not hooked up to her infusion pump last night!

The CHIRP team called yesterday and told us that her bloodwork from Monday looked great and they are confident in going to this next step which is to allow her to try and maintain her blood levels herself, without the aid of the IV infusions. We are praying that her body continues to be strong and that she will not need to go back on them. Bloodwork is scheduled for Monday and will continue to be weekly while we maintain her line at home.

At her appointment on the 28th, in two weeks, if all continues to go well, we will discuss/schedule a surgery time to get her line removed- This will be a procedure requiring anesthesia in the operating room. We must keep her line in at home for a few weeks while we make this transition because putting the line in (and taking it out) are major procedures and we want to be sure that she does not need the infusions.

Please continue to pray for sweet Mae while we take this major step forward in her treatment. We feel so fortunate to be loved and cared for by so many people. Mae is truly a miracle and she continues to show us daily just how special she is. Praise God! 

'I will give thanks to you, Lord, with all my heart; I will tell of all your wonderful deeds.' Psalm 9:1