Friday, December 15, 2017

Celebration and donuts!

Update 12-15-17

Mae's appointment at U of M went well on Wednesday. (Unfortunately, Ryan and her got stuck in the snow storm and it took them four and a half hours to get home! Thank God they arrived safely.) The doctors on Mae's intestinal rehabilitation team are pleased with her progress and weight gain. They made minimal changes to her daily routine. She will remain on her dosage of TPN until further notice, but, her fructose allotment of formula has increased by 1 oz. She is continuing to show great neurological signs with social smiles, tracking objects, and eye contact. She is truly amazing! Mae will be following up with all of her specialists at U of M in January- Dr. Garton with neurology, the intestinal rehabilitation team and Dr. Steien, genetics, and our pediatrician, Dr. Pedasky in St. Clair Shores. (January will be a busy month full of appointments.)

On Sunday, we will celebrate Mae's baptism at church in front of all of the wonderful, thoughtful, and caring members at Immanuel Lutheran who have kept us in their prayers and close to their hearts. We are looking forward to this beautiful day.

Going forward, prayers specifically for Mae's continued weight gain and neurological growth are so appreciated. 'Before I formed you in the womb I knew you, before you were born I set you apart.' Jeremiah 1:5 Mae is a miracle and she has been set apart, we are blessed to be her parents.


On a side note, our scout elf, Captain John, has been keeping a close eye on Will and Luke as Christmas approaches! He delivered donuts to the boys one morning this week!


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