Update: 12/19/17
Today is our eight year wedding anniversary! Life is good and we are so lucky to have each other!
Last night we took Will, Luke, and Mae to see Santa at the mall and everyone cooperated! Thought we'd share pictures of the fun!
Tuesday, December 19, 2017
Friday, December 15, 2017
Celebration and donuts!
Update 12-15-17
Mae's appointment at U of M went well on Wednesday. (Unfortunately, Ryan and her got stuck in the snow storm and it took them four and a half hours to get home! Thank God they arrived safely.) The doctors on Mae's intestinal rehabilitation team are pleased with her progress and weight gain. They made minimal changes to her daily routine. She will remain on her dosage of TPN until further notice, but, her fructose allotment of formula has increased by 1 oz. She is continuing to show great neurological signs with social smiles, tracking objects, and eye contact. She is truly amazing! Mae will be following up with all of her specialists at U of M in January- Dr. Garton with neurology, the intestinal rehabilitation team and Dr. Steien, genetics, and our pediatrician, Dr. Pedasky in St. Clair Shores. (January will be a busy month full of appointments.)
On Sunday, we will celebrate Mae's baptism at church in front of all of the wonderful, thoughtful, and caring members at Immanuel Lutheran who have kept us in their prayers and close to their hearts. We are looking forward to this beautiful day.
Going forward, prayers specifically for Mae's continued weight gain and neurological growth are so appreciated. 'Before I formed you in the womb I knew you, before you were born I set you apart.' Jeremiah 1:5 Mae is a miracle and she has been set apart, we are blessed to be her parents.
On a side note, our scout elf, Captain John, has been keeping a close eye on Will and Luke as Christmas approaches! He delivered donuts to the boys one morning this week!
Mae's appointment at U of M went well on Wednesday. (Unfortunately, Ryan and her got stuck in the snow storm and it took them four and a half hours to get home! Thank God they arrived safely.) The doctors on Mae's intestinal rehabilitation team are pleased with her progress and weight gain. They made minimal changes to her daily routine. She will remain on her dosage of TPN until further notice, but, her fructose allotment of formula has increased by 1 oz. She is continuing to show great neurological signs with social smiles, tracking objects, and eye contact. She is truly amazing! Mae will be following up with all of her specialists at U of M in January- Dr. Garton with neurology, the intestinal rehabilitation team and Dr. Steien, genetics, and our pediatrician, Dr. Pedasky in St. Clair Shores. (January will be a busy month full of appointments.)
On Sunday, we will celebrate Mae's baptism at church in front of all of the wonderful, thoughtful, and caring members at Immanuel Lutheran who have kept us in their prayers and close to their hearts. We are looking forward to this beautiful day.
Going forward, prayers specifically for Mae's continued weight gain and neurological growth are so appreciated. 'Before I formed you in the womb I knew you, before you were born I set you apart.' Jeremiah 1:5 Mae is a miracle and she has been set apart, we are blessed to be her parents.
On a side note, our scout elf, Captain John, has been keeping a close eye on Will and Luke as Christmas approaches! He delivered donuts to the boys one morning this week!
Friday, December 8, 2017
Rolling and Gaining :)
Update: December 8
Mae is continuing to gain weight!! She is practicing her tummy time and has started to roll over! We are going to setup our Christmas tree and enjoy some quality family time this weekend :) I am certain that she will enjoy looking at the bright, twinkling Christmas lights.
We are truly blessed to have Mae, her beautiful brothers, and the unconditional love and support that has been shown to our family. "Give thanks to the Lord for He is good; His love endures forever." Psalm 107:1
Mae is continuing to gain weight!! She is practicing her tummy time and has started to roll over! We are going to setup our Christmas tree and enjoy some quality family time this weekend :) I am certain that she will enjoy looking at the bright, twinkling Christmas lights.
We are truly blessed to have Mae, her beautiful brothers, and the unconditional love and support that has been shown to our family. "Give thanks to the Lord for He is good; His love endures forever." Psalm 107:1
Friday, December 1, 2017
Progress and pictures!
December 1- Mae is doing very well at home as we are all learning new routines and adjusting together. She is a happy, smiley, and precious little girl who loves being held, cuddled, and drinking her bottle! She is getting weekly nursing visits for weight checks and blood draws with follow up appointments at U of M and the Children's Intestinal Rehabilitation team every two weeks. She is continuing to improve and she is gaining weight. We are cautiously optimistic, taking one day at a time as she grows and develops. She is truly a miracle!
Over the Thanksgiving holiday we made our annual trip to Cheboygan to visit my family and everyone did SO during our travels! (Thank God!) We were nervous to venture out with the TPN, the formula mixing, medical supplies, etc... But, we did it and we are SO happy that we did! My family was excited to see Mae and they truly love spending time with the boys. We had an early birthday party for Will and took family photos! It was a great, much needed, getaway.
Neurologically, Mae is following objects with her eyes and reaching for items that she wants: Her pacifier, soft toys, her mobile, her brothers, etc... All of these are great signs that she is reaching her neurological milestones. Prayers for her brain to continue to grow, develop, and make connections are so important. We have a long road ahead with many unknowns but one thing that is certain is that this little girl is loved and cherished by so many people. We are so grateful for the support.
Over the Thanksgiving holiday we made our annual trip to Cheboygan to visit my family and everyone did SO during our travels! (Thank God!) We were nervous to venture out with the TPN, the formula mixing, medical supplies, etc... But, we did it and we are SO happy that we did! My family was excited to see Mae and they truly love spending time with the boys. We had an early birthday party for Will and took family photos! It was a great, much needed, getaway.
Neurologically, Mae is following objects with her eyes and reaching for items that she wants: Her pacifier, soft toys, her mobile, her brothers, etc... All of these are great signs that she is reaching her neurological milestones. Prayers for her brain to continue to grow, develop, and make connections are so important. We have a long road ahead with many unknowns but one thing that is certain is that this little girl is loved and cherished by so many people. We are so grateful for the support.
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