Sept. 25 at U of M

Sept. 25 Update- We are in the hospital at U of M as Mae's weight continued to drop over the weekend. We arrived to pediatric ER yesterday afternoon and were promptly admitted to the hospital. In the ER they performed an ultra sound on her brain and fluid levels/cyst/ventricles all appear as they did at birth, no additional swelling and no increase in fluids. Mae has had several blood draws and tests to try and figure out why she is having constant soiled diapers and not able to gain weight. She is on IV fluids as she was dehydrated and she's unable to eat while they're running tests and monitoring fluid in/out which makes for major irritability during her awake hours. Hoping to resume feeding once we meet with gastrointestinal specialists. Once again, we know we're at the best place for her as we're receiving top notch care. Based on discussions with pediatricians and other staff, our stay here will be until she's able to keep food in her body and get nourishment while gaining weight.