Sept. 25 at U of M

Sept. 25 Update- We are in the hospital at U of M as Mae's weight continued to drop over the weekend. We arrived to pediatric ER yesterday afternoon and were promptly admitted to the hospital. In the ER they performed an ultra sound on her brain and fluid levels/cyst/ventricles all appear as they did at birth, no additional swelling and no increase in fluids. Mae has had several blood draws and tests to try and figure out why she is having constant soiled diapers and not able to gain weight. She is on IV fluids as she was dehydrated and she's unable to eat while they're running tests and monitoring fluid in/out which makes for major irritability during her awake hours. Hoping to resume feeding once we meet with gastrointestinal specialists. Once again, we know we're at the best place for her as we're receiving top notch care. Based on discussions with pediatricians and other staff, our stay here will be until she's able to keep food in her body and get nourishment while gaining weight. 

September 15- Recovery

3 weeks 1 day old- We had a setback for a while.  Although Mae was eating plenty, exclusively breast milk, something in her body wasn't digesting it and turning it into calories.  Every day after coming home from the hospital she continued to lose weight.  At one point, she got into the danger zone having lost more than 15% of her body weight (26 ounces) since birth.  As of last Friday, she has now been on a special formula and she is trending upward back towards her birth weight. As of today she is 17 ounces below birth weight still, but is continuing to make up ground and add more and more each day.  Stacy is now attempting some very stringent dietary restrictions (no products with any kind of corn, soy, dairy) in an attempt to get Mae back on breast milk soon.

September 5

12 days old- Updated pictures! Mae is continuing to do a good job of eating, sleeping, making dirty diapers, and staying awake for longer periods of time. She is absolutely beautiful and her big brothers are loving having her around. Will adores her and wants to be a part of every diaper and outfit change, feeding, and snuggling session. Luke does not like to hear her cry and enjoys singing to her when she's upset. We're truly blessed to have her, life is great. Thank you for all of your prayers, we are grateful for the outpouring of love and support.