Mae will be taking a major step forward today in her intestinal healing process- Her TPN medication is being tweaked to include a dextrose solution base instead of the corrosive TPN base. This is incredible news and something that we have been working toward since being put on TPN nearly one year ago. Mae's eight hour medication cycle and infusion pump will remain the same, but, her solution bag will be different. In a 'perfect' world, and if all things go as planned, there is the potential for Mae to be off of this medication and have her Broviac port removed around Christmas- What a blessing that would be! Mae will be getting weekly blood draws, from our home health nurse, to monitor her levels as we start to make this transition.
Mae will be getting tubes placed in her ears at U of M on Monday, October 29th. She has not had any ear infections, but, she has failed two hearing tests since June and her ear drums are not functioning properly. We are hopeful that the tubes will improve Mae's hearing and encourage her speech to develop. Currently Mae does not have any words that she uses, she does babble and make sounds, but there is no connection with her speech and everyday objects/people. Within 24 hours of the surgery we have been told that Mae's hearing will improve significantly- As we approach this date we will be so appreciative of prayers for strength during the procedure and prayers of healing after.
Mae has a 'swallow test' at U of M next Friday, the 12th, to examine/explore issues that she is having with swallowing certain liquids, particularly water. This will be a follow-up study to a procedure that was done over the summer.
Regarding Mae's formula, we will be working toward switching her over from her specialized formula to Pediasure Grow & Gain. We attempted to start this change last week and Mae did not handle the transition well, she vomited and was sick for nearly three days. We will give this transition another attempt in the coming week. We will be starting slowly- Mixing 25% Pediasure to 75% formula. We are hopeful that in the next few weeks to a month that we can completely transition off of her formula and strictly onto the Pediasure Grow & Gain.
As always, we truly appreciate the prayers, thoughtful messages, reaching out to see how we are doing, cards, etc... We are blessed, beyond measure, to be parents to Mae, Will, and Luke. God is good and we are thankful.
'And let the peace of Christ rule in your hearts, to which indeed you were called in one body. And be thankful.' Colossians 3:15
Mae has a 'swallow test' at U of M next Friday, the 12th, to examine/explore issues that she is having with swallowing certain liquids, particularly water. This will be a follow-up study to a procedure that was done over the summer.
Regarding Mae's formula, we will be working toward switching her over from her specialized formula to Pediasure Grow & Gain. We attempted to start this change last week and Mae did not handle the transition well, she vomited and was sick for nearly three days. We will give this transition another attempt in the coming week. We will be starting slowly- Mixing 25% Pediasure to 75% formula. We are hopeful that in the next few weeks to a month that we can completely transition off of her formula and strictly onto the Pediasure Grow & Gain.
As always, we truly appreciate the prayers, thoughtful messages, reaching out to see how we are doing, cards, etc... We are blessed, beyond measure, to be parents to Mae, Will, and Luke. God is good and we are thankful.
'And let the peace of Christ rule in your hearts, to which indeed you were called in one body. And be thankful.' Colossians 3:15
No comments:
Post a Comment