Wednesday, February 14, 2018

The Most Precious Valentine

Update 2/14

The past few weeks have been stable, and relatively uneventful (medically) for Mae. She has enjoyed snow days with the boys and I, ventured out to church, is starting to make kissing sounds (thanks to Grandma Gayle) and is rolling all over the place! Her blood levels are normal and her nursing visits have been spaced out to every other week so that her TPN can be compounded based on what the bloodwork shows that she needs. She has tried (and accepted) two different kinds of meat- chicken and turkey. She does not 'love' either of them but we are working on increasing her amounts of each and fortunately she has not refused to eat them.

Ryan and I are taking care of her dressing changes which are becoming increasingly more difficult because she is moving like a maniac and grabbing at her cord/line every chance she gets! Although it makes everything more challenging, we are praising God for every movement, sound, smile, touch, eye contact, and roll that she does. The boys have been loving on their little sister more each day. Will is ready for her to talk and walk and Luke always makes sure that she gets her tummy time. Both of the boys are so proud of her, it is truly wonderful.

As is the case for all of us, each new day is definitely an adventure and we are embracing everything new and exciting that is happening in our family. We are thankful for all of the love and support.