Update 7/27

July 27- 35 weeks 0 days: Stacy had a regular doctor appointment with St. Clair Shores OB and Mae is measuring big, which we already knew/expected with both of the boys being big at birth, 9 lb. 7 oz. (Will) and 10 lb. 7 oz. (Luke). She is posterior (with her back facing toward Stacy's back) and is head down. Mae has been moving like crazy and this positioning would explain why her movements are so visible because her arms and legs are facing out. Her heart rate was 137.

(We're trying to relax as much as possible and enjoy this summer weather!)

Update 7/6/17

7/6/17...32 weeks 0 days. We had 5 appointments at UofM today. First was an ultrasound. Measurements on everything were good/head still measuring big (due to multiple factors). She is estimated to currently weigh  5 lb.  5oz  right now. There is/will be nothing new for now on the Turners syndrome or the ACC.  The 2 most pressing issues currently are the enlarged ventricles, and the arachnid cyst. Good news is that the cyst on the right side of the brain hasn't gotten any bigger (it is takes up approximately 33% of the right hemisphere currently). The enlarged ventricles are currently the biggest concern. We met with the MFM that we hope will deliver. They will determine whether it needs to be c-section or not after the ultrasound at 36 weeks depending solely on head size now. 

    We then met with Beth, the genetic counselor-she is great. We just touched base and set the next appointment dates (August 3rd.-all day).

   Stacy then had to go through a "new OB patient" visit with their OB clinic since we will now be delivering at UofM. Everyone there was fantastic. 

    Next, we had a scheduled tour of the NICU. We are still reasonably hopeful that the baby doesn't have to spend much time there. However, in the case she does-the whole unit/the staff, and their individual rooms are beyond amazing and comforting. 

   Last, we met with our Pediatric Neurosurgeon. If you happened to catch "Chika's Story" by Mitch Albom a couple weeks ago in the Free Press, this was their doctor.   http://www.freep.com/story/sports/columnists/mitch-albom/2017/06/11/chika-story-daughter-cancer-mitch-albom/322589001/   

He spent a long time with us, reviewing MRI images and going over all of the issues. He was very hopeful of a positive outcome. He was very encouraged that the size of the ventricles and the cyst have  not increased in the last few weeks and said that is what we need to hope for until birth. He is hoping to be able to delay treatment or surgery as long as possible. There is sill that chance that the cyst will spontaneously reduce after just  after birth and that the ventricles will not increase (hydrocephalus) in size and we may never need any procedures. These are 2 separate issues. We will see him next after birth to determine the next course of action. 

   Our next check on the sizes of these, as well as head size, will be at the ultrasound on August 3rd. Stacy has a regular OB appointment July 13th.